Paulene, 66, was diagnosed with Multiple Sclerosis (MS) at the age of 40, and has had bowel issues ever since. Her nurse recommended she try a new therapy, but what does an app have to do with bowel function...
– I have been using laxatives, laxatives and more laxatives... There have been examinations and investigations and it’s gotten worse and worse. A constant downward slope . . .Read More
Michael Kerr, of the Great Britain Rio Olympics rugby wheelchair team, talks about how an all-in-one catheter kit fits in with the life of a travelling athlete.Read More
Why is it needed?
I live an active life, travelling a lot, and sometimes I find myself in places without accessible toilets. That is when I appreciate using an all-in-one kit.
I’m Eleanor and I work for Select, an organisation that has previously worked with and supported the Back-Up Trust, so when the chance to apply for an activity course came up, for me it was an opportunity not to be missed! I was lucky enough to be selected to attend the course as a buddy – someone who helps to build confidence and independence for both the volunteers and also participants who have spinal cord injuries. Here is Part 2 of my story.Read More
I’m Eleanor and I work as part of the Select Home Delivery team. Working here, I have learnt a lot about the many different reasons people have to use catheters and continence products. I know that many of our patients have a spinal cord injury and how much of a life changing condition this can be, but I wanted to find out more.Read More
In June last year, I had the pleasure and privilege of being a member of a team from Wellspect HealthCare who cycled from London to Paris in order to raise money for the charity Back Up. This worked out perfect for me as it immediately became one of my new year’s resolutions! Here is PART 2 of my ride diary.Read More
In June last year, I had the pleasure and privilege of being a member of a team from Wellspect HealthCare who cycled from London to Paris in order to raise money for the charity Back Up. This worked out perfect for me as it immediately became one of my new year’s resolutions!Read More
"I thought prostate problems affected the oldies, not people like me, in their 40's. But when the weak flow, urgency and nightly visits to the toilet began, I began to wonder…" This is David's story.
Sooner or later most men will suffer from urinary problems. That’s no uplifting prognosis… But knowing about the symptoms – and the treatments – will make it less scary. It’s time to learn more about LUTS!
The Summer holidays may be coming to a close, but it is still a busy time for travelling. The airports and train stations will be clogged up with people, and travellers everywhere will ask themselves: Will I be there in time? Where is the passport? Some of you will also ask yourself: Will I be able to find an accessible toilet? Did I pack enough catheters? Is there anything else I need to consider?Read More
I began training with Millie my horse to prepare for my first para show-jumping competition at Bolesworth International. I was still losing weight but keen to attend. Millie and I finished just outside the placings but had a fantastic show. Shortly after coming home from Bolesworth, I won the Skegness young achievers award which was incredible. I felt so lucky to be recognised and once again it really boosted my confidence to continue what I was doing with my health and horses.Read More
As a 15 year old girl, living with Lipomyelomeningocele, a form of Spina Bifida which causes weakness as well as bladder and bowel issues, life isn’t easy, but my therapy is horses. I think it's fair to say that a lot of people with ongoing health issues will face challenges - that's completely normal. But it doesn't mean we should let that get in the way, not at all.Read More
I regularly use trains to travel across the UK and some of those journeys can be 3 to 4 hours long. As a wheelchair user, one of the biggest headaches with train travel is getting assistance with getting myself and my luggage onto and off the train.Read More
Whilst I was going through rehab, the physio told me about wheelchair rugby, which I thought was a wind up at the start. As I was interested in sport, this was something that really appealed to me. I went along to my first ever wheelchair rugby training session with a team called the Scottish Wildcats. Playing wheelchair rugby helped me regain my independence and allowed me to build up my strength and fitness in an enjoyable way, making everyday tasks easier. It also has a great social side and I have met people who will be my friends forever.Read More
Kavos, August 13th 2000, a place and date I will never forget. It was the summer of 2000, I had just finished studying health and fitness at college and had signed up to join the army. I was due to start my basic training in September so I thought I would treat myself to a holiday before the hard work started. My mates and I booked to go to Kavos in Corfu. It was a typical lad's holiday but on the 13th August, only 4 days into the holiday, my life changed forever.Read More
Joel’s older brother was driving the car, packed with siblings, returning from a sunny day at the lake when the accident happened. At the age of 9 Joel suffered a spinal cord injury, but it didn’t stop him from making his way to the dance floor.Read More
Born in Southern Sudan, injured in Egypt and living in Norway, I have experienced many kinds of medical care. This is my journey to a working bladder routine after suffering a spinal cord injury.Read More
If you ask the European Association of Urology Nurses (EAUN) they would say: Guidelines. We took the opportunity to talk to Susanne Vahr, Clinical Nurse Specialist at University Hospital of Copenhagen, but also a board member of EAUN, responsible for the EAUN guidelines.Read More
There are 10 000 people with a racing license in the UK. 200 of them are women, and one of them has a spinal cord injury. Her name is Nathalie McGloin and today she is at the ACCT symposium in Sweden to share her inspiring story. For you who will miss it – here is a teaser!
“When you’re on a race track with able-bodied drivers, you’re no longer a wheelchair user – you’re another competitor. It’s the freedom you strive for after a spinal cord injury," Nathalie says. "You want to be viewed as a person, not a disabled person.”Read More
One consequence of a broken spinal cord is loss of bladder and bowel control.
I saw a Facebook post a few weeks ago, a picture of a woman in some kind of yoga position and the text announced ”Your attitude is your best pain management tool”.
My first reaction was that someone obviously knew nothing about pain. But the more I thought about it, the more it grew on me. As simple as it sounds, it holds a lot of truth...Read More