As a 15 year old girl, living with Lipomyelomeningocele, a form of Spina Bifida which causes weakness as well as bladder and bowel issues, life isn’t easy, but my therapy is horses. I think it's fair to say that a lot of people with ongoing health issues will face challenges - that's completely normal. But it doesn't mean we should let that get in the way, not at all.Read More
I regularly use trains to travel across the UK and some of those journeys can be 3 to 4 hours long. As a wheelchair user, one of the biggest headaches with train travel is getting assistance with getting myself and my luggage onto and off the train.Read More
Holiday time is finally here, and people all around the world will be travelling. The airports and train stations will be clogged up with people, and travellers everywhere will ask themselves: Will I be there in time? Where is the passport? Some of you will also ask yourself: Will I be able to find an accessible toilet? Did I pack enough catheters? Is there anything else that I need to consider?Read More
Whilst I was going through rehab, the physio told me about wheelchair rugby, which I thought was a wind up at the start. As I was interested in sport, this was something that really appealed to me. I went along to my first ever wheelchair rugby training session with a team called the Scottish Wildcats. Playing wheelchair rugby helped me regain my independence and allowed me to build up my strength and fitness in an enjoyable way, making everyday tasks easier. It also has a great social side and I have met people who will be my friends forever.Read More
Kavos, August 13th 2000, a place and date I will never forget. It was the summer of 2000, I had just finished studying health and fitness at college and had signed up to join the army. I was due to start my basic training in September so I thought I would treat myself to a holiday before the hard work started. My mates and I booked to go to Kavos in Corfu. It was a typical lad's holiday but on the 13th August, only 4 days into the holiday, my life changed forever.Read More
Joel’s older brother was driving the car, packed with siblings, returning from a sunny day at the lake when the accident happened. At the age of 9 Joel suffered a spinal cord injury, but it didn’t stop him from making his way to the dance floor.Read More
Born in Southern Sudan, injured in Egypt and living in Norway, I have experienced many kinds of medical care. This is my journey to a working bladder routine after suffering a spinal cord injury.Read More
If you ask the European Association of Urology Nurses (EAUN) they would say: Guidelines. We took the opportunity to talk to Susanne Vahr, Clinical Nurse Specialist at University Hospital of Copenhagen, but also a board member of EAUN, responsible for the EAUN guidelines.Read More
There are 10 000 people with a racing license in the UK. 200 of them are women, and one of them has a spinal cord injury. Her name is Nathalie McGloin and today she is at the ACCT symposium in Sweden to share her inspiring story. For you who will miss it – here is a teaser!
“When you’re on a race track with able-bodied drivers, you’re no longer a wheelchair user – you’re another competitor. It’s the freedom you strive for after a spinal cord injury," Nathalie says. "You want to be viewed as a person, not a disabled person.”Read More
One consequence of a broken spinal cord is loss of bladder and bowel control.
I saw a Facebook post a few weeks ago, a picture of a woman in some kind of yoga position and the text announced ”Your attitude is your best pain management tool”.
My first reaction was that someone obviously knew nothing about pain. But the more I thought about it, the more it grew on me. As simple as it sounds, it holds a lot of truth...Read More
One consequence of a broken spinal cord is loss of bladder and bowel control.
”Pain is just weakness leaving your body”. Ever heard that statement? It’s a compelling slogan that the US Marine Corps use in their recruitment ads. It may be an effective recruiting tool, but is it true?
Nightly bathroom rounds, leakage or a constant feeling of never having fully emptied the bladder. These are common experience for men, often endured for years, and unfortunately like grey hair – a natural side effect of getting older.
Enlarged prostate, sometimes known as Benign prostatic hyperplasia (BPH), affects nearly half of men over the age of 65 years.Read More
In part two of his series, Kissinger Deng, a Paralympian living in Norway, talks about how the challenges and uncertainties he faced after sustaining a spinal chord injury have emboldened his outlook and shaped his attitude.
The white sands of Norway
We arrived on the 15th December at Gardermoen, Norway. We didn’t have winter clothing, and we were convinced that the snow outside was white sand. It was freezing cold - had I made the right choice? Was this going to be a good opportunity for us? We were brought to a reception center in Brøttum. And on the flight to Norway I developed a new pressure ulcer, which I had to treat myself. After 3 months with this ulcer I got admitted to Lillehammer hospital. I was there for about 4-5 months. Coming from Africa, they were afraid that I might carry infectious diseases, so they cleared a whole floor for me at the hospital. Every nurse and doctor who came to look after me was dressed in yellow plastic and had masks covering up their faces. My family stayed in Brøttum and had to get used to this new country by themselves.Read More
Many people think that an enlarged prostate (BPH) and prostate cancer are associated, but the simple answer is: No, they are not.
Professor Ralph Peeker explains the concepts.
With age, most men’s prostates grow. But an enlarged prostate (BPH) has nothing to do with cancer.Read More
In the first of a two part series, Kissinger Deng, a Paralympian living in Norway, recalls the events that led to his injury, and his difficult journey towards recovery. It's been far from easy, but there have been many triumphs along the way and Kissinger is happy to share his whole story with you.
Living the dream
I was born in 1979, in Sudan. My family are a part of the Dinka tribe. When I was nine years old we fled to Egypt to escape the conflict in my own country. I took up basketball there at twelve years old, and it quickly became my biggest passion, and I pursued my goal of playing in the NBA with absolute focus. I ate slept and dreamt basketball. At fifteen I played my first match as a professional. I was making fast progress on my way to achieving my dream as my team progressed through a tournament. Later that summer we made it to the finals for the under 17s. This was going to be a big match and I thought to myself - could this be the game that was going to take me and my family out of Egypt?Read More
Having suffered a SCI at age 16, Kissinger Deng knows the pitfalls involved in flying as a wheel chair user. A Paralympian, he flies often as the goal keeper for the Oslo Sledge Hockey team. Here he shares his tips for a hassle-free travel experience.
I travel a lot; with the hockey team and on holidays. A lot of people I speak with assume that traveling with a wheelchair is a stressful undertaking, but it really doesn’t have to be. With a lot of flying done, both alone and in company, I have accumulated quite a bit of experience. These trips weren’t only positive but enabled me to expand my knowledge of stress-free travelling :)Read More
There are always positives to be found among the downsides. If the disease or diagnosis, and the various associated matters weigh heavily, it helps to look for all the positive things in life that weigh against this. To achieve that balance, a caregiver needs to be prepared to talk, ask questions and not serve answers like an automaton.
What do you do when faced with the hard facts? How do you go on after a life-changing diagnosis that you will live with 24 hours a day, maybe for the rest of your life? There may be no cure, but there could be relief – and ways to gain new perspectives.
When you have a life changing experience such as an accident, or you get a diagnosis, a lot of things can change in your life. It is during times like these that we realize that no man is an island. We surely need people in our life. Through my work with CercaDeTi Rehab, my colleague and I have identified three key areas to work on to avoid isolation, which I shall share with you in this post.