It's time to stop ignoring major patient groups

March 23 2022

For a successful therapy, it’s important to find out the patients’ actual experiences when performing intermittent self catheterisation (ISC). But a lack of research can provide obstacles. Have we heard directly from the patient about the difficulties they face when approaching ISC?

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A recent study seeks to remedy this neglect in research; it involved a total of 200 adults who had independently been performing ISC for at least 6 months across the US.

A significant portion of patients with neurogenic bladder will develop lifelong dependence upon ISC for emptying their bladder. They are often patients with neurogenic diagnoses, such as spinal cord injuries, multiple sclerosis (MS) and Parkinson’s disease.

On an annual basis, neurogenic bladder will affect about 80% of patients with new spinal cord injuries, 70% of patients diagnosed with MS and 40% of patients who develop Parkinson's disease.

The current study:

  • Is unique considering its focus, study design, population size and diversity
  • Aims to quantify several aspects of the patient experience when performing ISC

The study included 200 individuals in urology and rehabilitation centres, who perform self-catheterisation, and their personal practice patterns were obtained and analysed.

The data obtained included variables such as:

  • the position adopted when catheterising
  • the type of catheter used (e.g., hydrophilic)
  • the functional level of dexterity
  • whether patients felt they were adherent to the antiseptic guidelines and other instructions provided with catheter products

The results revealed high satisfaction scores related to ISC for the vast majority of participants 

High satisfaction was reported among participants, related to:

  • ease of use
  • convenience
  • discreetness
  • and psychological well‐being

In addition, the results showed a need to improve convenience regarding ISC for patients when travelling, as well as understanding long‐term complications of ISC, especially related to UTIs.

Highlighting the importance of patient education, the authors state that the results of the current study will allow clinicians to target one specific issue in one discrete phase of the ISC process, and, if improved upon, will enhance QoL.

Download the Publication Highlight for Roberson et al. Neurourology  Urodynamics, August 2021

Topics: quality of life, Spinal Cord Injury