Having organised their whole lives around her enema schedule, Alice and her family discovered the benefits of Transanal Irrigation – TAI. Would Alice finally be able to go to the toilet without pain?
It wasn't painful at all.
It took two days for Alice to get used to TAI*
Eventually, Alice would only need the minimum of assistance from her parents.
As she grows older, Alice now uses TAI once a day, and the freedom enables her to take part in fun activities – she loves dancing and horse riding without having to wear a nappy. Having endured such a difficult and exhausting time, the family can now look to the future while enjoying their present.
Bladder and Bowel interaction
Not being able to empty the bowel exerts pressure upon the kidneys and the bladder, leading to incomplete emptying of the bladder, which can lead to Urinary Tract Infections and impaired function of the kidneys. The bladder and bowel interact . Alice has had complication with her kidneys but as TAI supports their functioning with the regular emptying of the bowels. This in turn supports the effective functioning of the bladder.
Using a digital device
Using a digital device for TAI allows Alice's parents to use the same optimal settings for each irrigation and fully control the procedure. The data can be sent directly to their health care professional, but the procedure has been so effective that they have never actually had to contact their nurse through this channel.
What about play dates, sleepovers and telling other parents?
Alice looks like any other healthy ten year old and, as a result, her parents have found that other's have found it difficult to comprehend why she needs to use TAI. As Alice uses TAI once a day in the family home, her parents have found that there is no need to inform others about the procedure. Currently Alice only needs the minimum of assistance, and eventually, will require no assistance. It is not an issue and definitely doesn't stop Alice from enjoying play dates with her friends or sleepovers at her grandparents. Still, Alice and her parents feel no stigma about the therapy, and are happy to talk about it if asked.
Alice is a Navina™ product user.
What does Alice think about TAI?
For all these reasons, Alice is really passionate about spreading the knowledge of TAI. The thought of other children having to endure painful procedures when there is an alternative makes her frustrated. She hopes that all children who need it will be able to use it and be able to enjoy the life she now enjoys.
We have gathered information from healthcare professionals, scientific experts, parents and users. We hope to increase your knowledge and motivation to start using TAI together with your child!
*It may take up to 12 weeks to find the optimal irrigation routine and have a satisfying outcome for you. When the initiation period is over and you have found a routine that works for you, it may suffice to irrigate every other day, but this is highly individual.
Alice's family have received compensation from Wellspect to share her story.